Долгая жизнь с муковисцидозом

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2018

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Celis-Gennart M, Vannotti M. Le syndrome douloureux chronique a la lumiere de I'histoire familiale. In Malades et families. Penser la souffrance dans une perspective de la complexite. Geneve: Ed. Medecine et Hygiene; 1998; 103-26.

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Buytendijk FJJ (1948 original). De la douleur. Translated into French. Paris: PUF; 1951.

652

Clisby N, Shaw S, Cormack M. Psychological impact of working with patients with cystic fibrosis at end-of-life, pre-transplant stage. Palliat Support Care 2013; 11: 111-21.

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Sands D, Repetto T Dupont LJ, et al. End of life care for patients with cystic fibrosis. J Cyst Fibros 2011; 10Suppl2:S37-44.

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Chapman E, Landy A, Lyon A, et al. End of life care for adult cystic fibrosis patients: facilitating a good enough death. J Cyst Fibros 2005; 4: 249-57.

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Collins S, Reynolds F. How do adults with cystic fibrosis cope following a diagnosis of diabetes? J Adv Nurs 2008; 64: 478-87.

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Quibell R, Booth Z, Doe S, et al. An integrated model of specialist palliative care (SPC) for cystic fibrosis (CF). BMJ Support Palliat Care2014;4Suppl1: A13.

657

Braithwaite M, Philip J, Tranberg H, et al. End of life care in CF: patients, families and staff experiences and unmet needs. J Cyst Fibros 2011; 10:253-7.

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